Thursday, February 23, 2012

Hi my name Amber.  Welcome to my Blog. I am 20 years old. I have MD. I was 5 when i was diagnosed.  My legs are tightening. I have a scar on my left leg from my first surgery.  I have  a scar on  my back from my scoliosis surgery.  I have a scar from the  top of my right leg to my ankle.   I remember what is like to run and walk by myself. It made me feel good. I smile  and laugh everyday. Time for lunch.

15 comments:

  1. I am so proud of you! Great job on your first post.

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  2. Hi Amber,
    You are a very courageous young woman. It's good of you to help educate others about the nature of your illness and the things you have to go through.
    God bless you!

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  3. Hi Amber, I am a friend of Mr Eggenbergers and he shared your story with me. I am glad to see you are creating a blog so the rest of the world can understand what your going thru and maybe some of us can help in some way. In the meantime, keep us up to date with lots of posts and I'll keep you and your family in my prayers!

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  4. Hello Amber. I am a friend of Mr.Eggenberger as well :) Actually I went to high school with him and his wife. I haven't seen them since school. Its been *looking around and whispering* about 22 years ago. Tee Hee :)But because of the wonderful world of technology and facebook our paths have crossed and because of that now our paths have crossed. You seem to be a wonderful person. I am looking forward to learning more about you thru your blog! May your heart be ever filled with His Joy and Peace. Blog with you soon! :)
    Jody

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  5. I'm so proud of you Amber! You are courageous! It amazes me that you can keep a smile on your face and endure daily pain. I hope that this blog allows others to get to know the beautiful person I know. Keep smiling and laughing, and continue sharing your experiences. You will be such a blessing and encouragement to others!

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  6. HI AMBER!! How you doing? I had (Have a blog) that I've done on and off for years...it was started just to help me write, its pretty goofy. I haven't been on in a while. http://krisscop.blogspot.com/ click on that and it will take you to my blog.

    I used to work in Ithaca, I live in Mt Pleasant. If you want to email me it is Donna Kriss at krisscop@yahoo.com

    My Neice also was diagnosed with MD, She is from Iowa, She was a "POSTER" Child one year for Jerry Lewis Telethon.

    I'm not working so if you need to chat or whatever feel free to email me, then I'll give you my number.

    I have 3 kids, plus one more, two more are in heaven waiting for me to rock them. I took care of my mom the last four years, she passed away in June, so I guess SHE is rocking them now!

    Do YOu know how to Video chat? or that camera thing phone call Skype?
    OK My new friend...hope to hear from you soon.

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  7. Hello, Amber! I am a friend of Ben and Kristina Eggenberger:) I enjoyed reading your blog:) What a great way for you to share your journey in life with others. I look forward to following along as you post updates. Many blessings to you and your family.
    Jen

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  8. Hi Amber, I too heard your story from Ben E. When he told me about your blog, I read your post and my heart was encouraged by your smile, I could almost see it!! I have a neice with MS, and she, like you, inspires me with her beautiful courageous spirit. You are both living proof that if you can smile through the pain and scars that your condition leaves on your body, then there's no way those conditions can never scar your soul. Keep smiling, and may God richly bless you every day, every hour, every moment on your journey. Ginger

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  9. Thank you everyone who commented on my blog. I had botox this weekend in my left leg and my left arm because my muscle tightens. The botox loosens tight muscles. It takes 2 weeks for it to work. It hurts at first but it makes me feel better. I'll try to repsond to some of your messages when I get a chance.

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  10. Wow - I didn't realize Botox had *useful uses! Is this treatment is this something you do on a regular basis or is it only done when you have a particular need for it?

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  11. Hi Amber,
    Your blog is very interesting! It's good that you can teach us about MD. I'm looking forward to reading your blog updates. See you soon!
    Sheryl

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  12. I agree with Ben. Who would have thought Botox was useful apart from vanity purposes? I am so glad that it WILL benefit you. I was happy to see you post. Please keep on keeping us posted! God Bless you!

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  13. Hi Amber,

    I think following your blog is going to be quite an education for many of us. Thank you so much for your willingness to share your journey. And ditto on the whole Botox thing. Wow... who would have thunk! I'll be thinking of you :)
    Tavy

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  14. I told ya Amber, everyone would think you were crazy if you didn't explain why you were getting botox! It can be useful for individuals with voice problems also, botox can be injected into the vocal folds. Most people don't know it has very useful purposes!

    I hope you had a good weekend and I'm looking forward to our next "blog session." Your blog is off to a great beginning and I'm so appreciative for all of the positive responses we have had! SUCCESS!!! Thanks for getting the word out Ben!

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