Thursday, March 29, 2012


Music I like is Country  Music.  I like all Country singers and The Chosen Ones are the great gospel singers. I have always liked country music because I grew up with it. I listened to Martina McBride a lot. I have all of her CD's.

Wednesday, March 21, 2012


Things I enjoy are VAD summer camp Volunteers  Assisting the  Disabled.  At camp we swim and do  bowling games.  We also have a dance and closing cermonys.  My favorite part is the dance because of the cute boys.  I enjoy bowling at school. I enjoy being around friends.  
My dreams are that I would have a cure for this disease.  That I could walk and stand without help.  And not sit in a wheelchair all day.  I also have a dream to go to Disney World.  The farthest I’ve ever been is Cincinnati, Ohio.  I went to Ohio to see Martina McBride from Make A Wish Foundation.  It was a big surprise!  And I loved it.     

Wednesday, March 7, 2012


The way that I get around is I use  a power wheelchair and  a walker. I like to use the walker. I like  to use my  power wheelchair.       

I struggle with eating.  It is difficult because my jaw and mouth get tired.  It takes me an hour to eat a meal.  My food has to be pureed, even hamburgers and steaks.  Everything looks like baby food.  It’s hard for me to swallow pills.  Very hard! I take 13 pills in the morning, some are new pills.  I take one at 11 and 3 a 1:00.  And more at night.  Almost 30 every day. That’s a lot of pills! I drink out of a straw.  If my mouth is dry, it’s harder for me to drink. It’s harder to get the suction for the straw. Have you ever had chocolate cake pureed? You should try it sometime. I like chocolate ice cream. Ice cream is easier, you don’t have to puree it. I’ve been standing for 40 minutes that I have been writing this.   


Thursday, March 1, 2012

Wednesday was pretty boring. I sat in the recliner all day because I had a snow day. I had to ask to be taken to the bathroom and I needed help taking a shower. Thursday morning, today I was in therapy. They stretched my left leg. Now I feel tired. Next Tuesday I am going up to 10 minutes on the treadmill. One person has to stand beside me and I hold myself up with my arms. This is so I can strengthen my legs for standing and walking.